Chronic pain stigma Quotes

“Healing severe or chronic pain, I believe, includes transforming our relationship to the pain, and, ultimately, it is about transforming our relationship to who we are and to life.”

“We can feel isolated and powerless when living with chronic illness, but what if your story begins to bridge the barrier or open a way for someone to connect? What if your story offers a glimmer of hope to someone standing at the edge of desolation? ...What if your story starts the conversation?”

“Chronic illness is hard. Pain is hard. Isolation is hard. The financial cost is hard. Grieving is hard and necessary and sometimes takes far longer than we every imagined.”

“I thought having a chronic illness would make my life detour in ways I didn't want to accept, but I've learnt that have a chronic illness made the only detours that are worth the growth.”

“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to treat you for your ‘false illness beliefs’?This is what happens to Myalgic Encephalomyelitis (ME) patients in the UK. They are told to ignore their symptoms, view themselves as healthy, and increase their exercise. The NHS guidelines amalgamate ME and Chronic Fatigue Syndrome, assuming symptoms are caused by deconditioning and ‘exercise phobia’. Sufferers are offered Graded Exercise to increase fitness, and Cognitive Behavioural Therapy (CBT) to rid them of their ‘false illness beliefs’.”

“If I only could explain How much I miss that precious moment when I was free from the shackles of chronic pain.”

“A common misconception is that some people are only in pain because they are weak, anxious, depressed, or do not deal well with stress. This is not correct.Every experience you have — touch, warmth, itch, pain — is created by the brain and thus is all in your head, but it does not mean they are not real.Things like fear, anxiety, or depression can increase pain levels and can increase the chance of persistent pain. But often, these feelings only develop after a person already has chronic pain.”

“Astray from a deep sleep chronic as I write by phonics, like insomnia I will always live the onyx night for revealing, and, upon it, still I'll steal the bright light of day right away just to keep building at speeds hypersonic.”

“Sometimes, this disapproval of how you are managing your pain crosses over to disbelief that you are in as much pain as you say you are. They don’t believe that your pain is a legitimate enough reason to rest or nap or cry or take narcotic medications or not go to work or to go to the doctor. They might think that you are making too big of a deal out of it. They doubt the legitimacy of the pain itself.This kind of stigma is the source of the dreaded accusation that chronic pain is “all in your head.” It’s as if to say that you are making a mountain out of a molehill.”