Myotonic dystrophy Quotes

“I haven’t been able to pray with the same unquestioned simplicity of hope since Dustin passed. My childhood ended the day my brother died. The naive hope that a miracle would save him, that he would one day walk, that a disease was a blessing in my family – that hope died with him.”

“I haven’t been able to pray with the same unquestioned simplicity of hope since Dustin passed. My childhood ended the day my brother died. The naive hope that a miracle would save him, that he would one day walk, that a disease was a blessing in my family – that hope died with him.”

“If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.”

“There's already a lot of active research going on using the Crispr technology to fix diseases like Duchenne muscular dystrophy or cystic fibrosis or Huntington's disease. They're all diseases that have known genetic causes, and we now have the technology that can repair those mutations to provide, we hope, patients with a normal life.”