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“The rain set early in tonight,The sullen wind was soon awake,It tore the elm-tops down for spite,And did its best to vex the lake:I listened with heart fit to break.When glided in Porphyria; straightShe shut the cold out and the storm,And kneeled and made the cheerless grateBlaze up and all the cottage warm;”
Robert Browning“Real life... Witches: Wiccan practitioners. Werewolves: rare strain of rabies. Zombies: Prions/Plague. Vampires: Hemophilia/Porphyria”
Solange nicole“You go on with your life, because life goes on,” says Isabel. “You see this in anyone who has survived a traumatic situation. My own daughter died, for example.” Her only daughter, Paula Frias, died of porphyria in 1992 at the age of twenty-seven. “At first you think you can’t live with this,” says the author, who just turned sixty-five. “It’s just too much. Then life begins to take over. One morning you wake up and you want to eat chocolate. Or walk in the woods. Or open a bottle of wine. You get back up on your feet.” “When you can, right?” “You have no choice!” Isabel insists. “You cannot let the bullies keep you on the floor! I have been on my knees a thousand times, and I always get up.”
Mark Matousek, When You're Falling, Dive: Lessons in the Art of Living