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“Neurologically, I'm a quadriplegic, so virtually everything about my work has been driven by my learning disabilities, which are quite severe, and my lack of facial recognition, which I'm sure is what drove me to paint portraits in the first place.”
Chuck Close“Want to play hangman? asks Theophile, and I ache to tell him that I have enough on my plate playing quadriplegic. But my communication system disqualifies repartee: the keenest rapier grows dull and falls flat when it takes several minutes to thrust it home. By the time you strike, even you no longer understand what had seemed so witty before you started to dictate it, letter by letter. So the rule is to avoid impulsive sallies. It deprives conversation of its sparkle, all those gems you bat back and forth like a ball-and I count this forced lack of humor one of the great drawbacks of my condition.”
Jean-Dominique Bauby, The Diving Bell and the Butterfly“I turned in my seat. Will’s face was in shadow and I couldn’t quite make it out.‘Just hold on. Just for a minute.’‘Are you all right?’ I found my gaze dropping towards his chair, afraid some part of him was pinched, or trapped, that I had got something wrong.‘I’m fine. I just . . . ’I could see his pale collar, his dark suit jacket a contrast against it.‘I don’t want to go in just yet. I just want to sit and not have to think about . . . ’ He swallowed.Even in the half-dark it seemed effortful.‘I just . . . want to be a man who has been to a concert with a girl in a red dress. Just for a few minutes more.’I released the door handle.‘Sure.’I closed my eyes and lay my head against the headrest, and we sat there together for a while longer, two people lost in remembered music, half hidden in the shadow of a castle on a moonlit hill.”
Jojo Moyes, Me Before You“Don’t you think it’s actually harder for you . . . to adapt, I mean? Because you’ve done all that stuff?’‘Are you asking me if I wish I'd never done it?’‘I’m just wondering if it would have been easier for you. If you’d led a smaller life. To live like this, I mean.’‘I will never, ever regret the things I've done. Because most days, if you’re stuck in one of these, all you have are the places n your memory that you can go to.’ He smiled. It was tight, as if it cost him. ‘So if you’re asking me would I rather be reminiscing about the view of the caste from the minimart, or that lovely row of shops down off the roundabout, then, no. My life was just fine, thanks.”
Jojo Moyes, Me Before You“Some disabled people spend a significant amount of their energy on trying to come across as abled or as not that disabled.”
Mokokoma Mokhonoana