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“... we have created a man with not one brain but two. ... This new brain is intended to control the biological brain. ... The patient's biological brain is the peripheral terminal -- the only peripheral terminal -- for the new computer. ... And therefore the patient's biological brain, indeed his whole body, has become a terminal for the new computer. We have created a man who is one single, large, complex computer terminal. The patient is a read-out device for the new computer, and is helpless to control the readout as a TV screen is helpless to control the information presented on it.”
Michael Crichton“In 2008, the national Coping with Cancer project published a study showing that terminally ill cancer patients who were put on a mechanical ventilator, given electrical defibrillation or chest compressions, or admitted, near death, to intensive care had a substantially worse quality of life in their last week than those who received no such interventions. And, six months after their death, their caregivers were three times as likely to suffer major depression. Spending one’s final days in an I.C.U. because of terminal illness is for most people a kind of failure. You lie on a ventilator, your every organ shutting down, your mind teetering on delirium and permanently beyond realizing that you will never leave this borrowed, fluorescent place. The end comes with no chance for you to have said goodbye or “It’s O.K.” or “I’m sorry” or “I love you.”People have concerns besides simply prolonging their lives. Surveys of patients with terminal illness find that their top priorities include, in addition to avoiding suffering, being with family, having the touch of others, being mentally aware, and not becoming a burden to others. Our system of technological medical care has utterly failed to meet these needs, and the cost of this failure is measured in far more than dollars. The hard question we face, then, is not how we can afford this system’s expense. It is how we can build a health-care system that will actually help dying patients achieve what’s most important to them at the end of their lives.”
Atul Gawande“Dear Whoever-that-just-found-out-that-they-have-a-terminal-illness, don't let that put you down. Technically, we are all dying.”
Mokokoma Mokhonoana“A study led by the Harvard researcher Nicholas Christakis asked the doctors of almost five hundred terminally ill patients to estimate how long they thought their patient would survive, and then followed the patients. Sixty-three per cent of doctors overestimated survival time. Just seventeen per cent underestimated it. The average estimate was five hundred and thirty per cent too high. And, the better the doctors knew their patients, the more likely they were to err.”
Atul Gawande, Being Mortal: Medicine and What Matters in the End“There is no God for sure, else how could one justify terminal diseases in small kids?”
Pawan Mishra, Coinman: An Untold Conspiracy“I am reminded of an image...that living with a terminal disease is like walking on a tightrope over an insanely scary abyss. But that living without disease is also like walking on a tightrope over an insanely scary abyss, only with some fog or cloud cover obscuring the depths a bit more -- sometimes the wind blowing it off a little, sometimes a nice dense cover.”
Nina Riggs, The Bright Hour: A Memoir of Living and Dying“But you are not your bank account, or your ambition. You're not the cold clay lump you leave behind when you die. You're not your collection of walking personality disorders. You are Spirit, you are love, and even though it is hard to believe sometimes, you are free. You're here to love, and be loved, freely. If you find out next week that you are terminally ill - and we're all terminally ill on this bus - what will matter are memories of beauty, that people loved you, and that you loved them.”
Anne Lamott, Plan B: Further Thoughts on Faith“Missing Alina was worse than a terminal illness. At least when you were terminal you knew the pain was going to end eventually. But there was no light at the end of my tunnel. Grief was going to devour me, day into night, night into day, and although I might feel like I was dying from it, might even wish I was, I never would. I was going to have to walk around with a hole in my heart forever. I was going to hurt for my sister until the day I died. If you don't know what I mean or you think I'm being melodramatic, then you've never really loved anyone.”
Karen Marie Moning, Darkfever“1. Who is a Death Warrior?Anyone can be a Death Warrior, not just someone who is terminally ill. We are all terminally ill. A Death Warrior accepts death and makes a commitment to live a certain way, whether it be for one year or thirty years.2. When does one become a Death Warrior?There is a specific moment during which you can decide to become a Death Warrior. That moment is when death shows you that you will die.3. How do you become a Death Warrior?Once you accept that life will end, you can become a Death Warrior by choosing to love life at all times and in all circumstances. You choose to love life by loving.4. What are the qualities of a Death Warrior?A Death Warrior is grateful for every second of time given and is aware of how precious each second is. Every second not spent loving is wasted. The Death Warrior's enemy is time that is wasted by not loving.5. Why should you become a Death Warrior?So you can live and die with truth and courage, and because life is too painful when you're wasteful with the time given to you.--The Death Warrior Manifesto, by DQ”
Francisco X. Stork, The Last Summer of the Death Warriors