“Maintaining the thinnest facade of a functioning family that tries to act as others do - plan ahead, drive somewhere, go on holiday, relax - is beyond us. We are smashed. Insecurity jams the gears on every action. Each time we are toppled. I feel a fool over and over again for trying.”

“Maintaining the thinnest facade of a functioning family that tries to act as others do - plan ahead, drive somewhere, go on holiday, relax - is beyond us. We are smashed. Insecurity jams the gears on every action. Each time we are toppled. I feel a fool over and over again for trying.”

“What is coping? This is what it is like: a cave underground deep in rock, hung across its roof with accretions of dripping salts. I am cavernous and hard as mineral. The cave holds a pool of dark water that has not seen light. The water is very cold; it is undrinkable and its size is unmapped. It is mine, but people cannot see it. Only Ev sometimes senses that it is there. All the time people say that I am coping very well. It is impossible to explain my strategy to them. It is opaque even to me.”

“So what did you do when death came to your house? We continued in the same way as before. What is that, a failure of the imagination? Are you in denial? This is not wholly true; we continue in the same way as before but in parenthesis. My thinking has switched its grammar. The present continuous is its single operational tense. Uncertainty is our present and our future.”

“Childbirth is nothing. Death is mighty. The 0 to our 1. There is nothing in the world like it. But there is nothing in it that is not like the world.”

“I learn so much that I previously did not know about the world of the immobile that it is hard to believe it all takes place over a few hours. At random: I learn about the casual indifference of the London cabbie to the wheelchair user and that the clearance on accessible entrances is measured in millimetres less than a knuckle. I learn how intractable it is to push a grown man around for hours and how spontaneity is the privilege of the able-bodied. In solid counterpart to all this grief, I learn about the lengths nurses are prepared to go to assist a purely recreational and ambitious project by one of their patients.”