“Once you open your home to nursing, you essentially become the employer of a small staff, even if you aren’t signing the paychecks. As in any workplace, the staff needs to know the rules and expectations, and it is your job to set them and communicate them well. This is your new job; you’ve been promoted to Home Care CEO.”

“In the great tornado of life, things sometimes seem out of control, and we can’t see where we are going. But sometimes, when the storm passes and the dust settles, things have landed into place beautifully.”

“The scariest, ugliest stories about in-home nursing usually are the result of nurses demonstrating a lack of professionalism, bad morals or a disregard for the child for whom they are providing care.”

“Once you open your home to nursing, you essentially become the employer of a small staff, even if you aren’t signing the paychecks. As in any workplace, the staff needs to know the rules and expectations, and it is your job to set them and communicate them well. This is your new job; you’ve been promoted to Home Care CEO.”

“When it is managed effectively, in-home nursing can become a support for caregivers and families stressed with the care of a medically fragile child.”

“Managing in-home nursing is not always easy. It can be terribly frustrating sometimes, and it can take a while to feel like everything is under control, but success is possible.”

“Even though our journey as parents of a medically fragile child began with emotional turmoil, it has since become a purposeful odyssey that brings meaning and depth to our lives. This is the road we were born to travel.”

“Think of instinct as an unscientific, unquantifiable tool that can be used along with more concrete evaluations to make a well-rounded decision.”

“An exhausted parent can’t provide the best care, although occasionally, we have all had to do so.”

“The more love and support your child receives, the richer his or her life becomes, and nurses can certainly add to the circle of love surrounding your child.”

“Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support the health of their children.”